The Barcelona Macula Foundation will attend the seminar entitled “Disruptive and Innovative Approaches in Rare Disease Research”, which is to be held at the Vall d’Hebron Hospital on 9 July. The aim of the event is to publicise these diseases, which are minority, serious and affect only a small number of people.
Danilo Tagale, the Programme Director in Neurogenetics at the National Institute of Neurological Disorders and Stroke (NINDS) of the University of Michigan, will lead the seminar. The role of the National Institutes of Health will be acknowledged in raising funds for research programmes and how this can help research into rare diseases.
Approximately 5 out of every 10,000 people are affected by some type of disease. The fact that there is such a variety and that they affect a small number of patients means that they are barely known. Most are chronic and generally degenerative.
Image: Professor Danilo Tagale. (VHIR)